Alopecia Areata - Research

Alopecia Areata - Research

UK

The aim of Alopecia UK is to provide information, advice and support for people with experience of alopecia areata, alopecia totalis and alopecia universalis.

USA

How Can I Take Part in Research?

A good place to start is the National Alopecia Areata Registry sponsored by the NIAMS.

The registry, a network of five centers, will identify and register patients with the disease and collect information and blood samples (containing genes).

Data, including genetic information, will be made available to researchers studying the genetic basis and other aspects of the disease and disease risk.

The registry is seeking U.S. residents with alopecia areata, alopecia totalis, or alopecia universalis diagnosed by a dermatologist.

Although the registry itself will not be involved in any kind of treatment for alopecia areata, people who register will be made aware of studies for which they may qualify.

To take part in the registry, people don't have to live near or travel to one of the five centers; however, they do have to meet some requirements to participate.

For more information, log onto the registry Web site at www.AlopeciaAreataRegistry.org or have your doctor contact:

Madeline Duvic, M.D., Principal Investigator
Department of Dermatology
M.D. Anderson Cancer Center
1515 Holcombe Boulevard, Box 434
Houston, TX 77030
Phone: 713-792-5999
Fax: 713-794-1491
E-mail: alopeciaregistry@mdanderson.org

Where Can I Learn More About Alopecia Areata?

You can get additional information through the following organizations:

• National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
  National Institutes of Health
  1 AMS Circle
  Bethesda, MD 20892-3675
  Phone: 301-495-4484 or
  877-22-NIAMS (226-4267) (free of charge)
  TTY: 301-565-2966
  Fax: 301-718-6366
  E-mail: NIAMSInfo@mail.nih.gov
  www.niams.nih.gov
  
   
• National Center for Complementary and Alternative Medicine Clearinghouse
  P.O. Box 7923
  Gaithersburg, MD 20898
  Phone: 301-519-3153 or
  888-644-6226 (free of charge)
  TTY: 866-464-3615
  Fax: 866-464-3616
  E-mail: info@nccam.nih.gov
  http://nccam.nih.gov
  
   
• American Academy of Dermatology
  P.O. Box 4014
  Schaumburg, IL 60168-4014
  Phone: 847-330-0230 or
  888-462-DERM (3376) (free of charge)
  Fax: 847-330-0500
  www.aad.org
  
   
• National Alopecia Areata Foundation
  P.O. Box 150760
  San Rafael, CA 94915-0760
  Phone: 415-472-3780
  Fax: 415-472-5343
  E-mail: info@naaf.org
  www.naaf.org
  
   
• American Hair Loss Council
  125 Seventh Street, Suite 625
  Pittsburgh, PA 15222
  Phone: 412-765-3666
  Fax: 412-765-3669
  www.ahlc.org

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Alopecia Areata - Research