Alopecia Areata - Research
UK
The aim of Alopecia UK is to provide information, advice and support for people with experience of alopecia areata, alopecia totalis and alopecia universalis.
USA
How Can I Take Part in Research?
A good place to start is the National Alopecia Areata Registry sponsored by the NIAMS.
The registry, a network of five centers, will identify and register patients with the disease and collect information and blood samples (containing genes).
Data, including genetic information, will be made available to researchers studying the genetic basis and other aspects of the disease and disease risk.
The registry is seeking U.S. residents with alopecia areata, alopecia totalis, or alopecia universalis diagnosed by a dermatologist.
Although the registry itself will not be involved in any kind of treatment for alopecia areata, people who register will be made aware of studies for which they may qualify.
To take part in the registry, people don't have to live near or travel to one of the five centers; however, they do have to meet some requirements to participate.
For more information, log onto the registry Web site at www.AlopeciaAreataRegistry.org or have your doctor contact:
Madeline Duvic, M.D., Principal Investigator
Department of Dermatology
M.D. Anderson Cancer Center
1515 Holcombe Boulevard, Box 434
Houston, TX 77030
Phone: 713-792-5999
Fax: 713-794-1491
E-mail: alopeciaregistry@mdanderson.org
Where Can I Learn More About Alopecia Areata?
You can get additional information through the following organizations:
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or
877-22-NIAMS (226-4267) (free of charge)
TTY: 301-565-2966
Fax: 301-718-6366
E-mail: NIAMSInfo@mail.nih.gov
www.niams.nih.gov
- National Center for Complementary and Alternative Medicine Clearinghouse
P.O. Box 7923
Gaithersburg, MD 20898
Phone: 301-519-3153 or
888-644-6226 (free of charge)
TTY: 866-464-3615
Fax: 866-464-3616
E-mail: info@nccam.nih.gov
http://nccam.nih.gov
- American Academy of Dermatology
P.O. Box 4014
Schaumburg, IL 60168-4014
Phone: 847-330-0230 or
888-462-DERM (3376) (free of charge)
Fax: 847-330-0500
www.aad.org
- National Alopecia Areata Foundation
P.O. Box 150760
San Rafael, CA 94915-0760
Phone: 415-472-3780
Fax: 415-472-5343
E-mail: info@naaf.org
www.naaf.org
- American Hair Loss Council
125 Seventh Street, Suite 625
Pittsburgh, PA 15222
Phone: 412-765-3666
Fax: 412-765-3669
www.ahlc.org
Alopecia Areata - Research